Sorting through the endless masses of information on the web can be a donting project. Though it is an invaluable resource, I almost always find myself overwhelmed when searching a new subject. Embarking on the arduous task of seeking information about kidney disease was no different!!I seem to go through this cycle every time: get entangled in the jungle of info., forget about what it is exactly I'm looking for, get frustrated, and then...I start making lists. Lots and lots of lists!!! Its cathartic, granted, most of these get lost or end up in the wash but it still makes me feel better.. It gives me a place to start, and a visual place to go back to once I enter the labyrinth that is the web.
The transplant clinic gave me a great place to start by giving us all packets with dozens of web sites. From there I started sorting through the ones that were the most helpfull, and crossed off the ones that were redundant or not applicable. Then of course I split these into lists. Web sites that gave general info. on the disease, and useful facts. Web sites that would help with fundraising. Web sites that offer support to those having a tough time, and need to speek with others going through the same thing. My favorites are those that talk about diet, and how changing your diet is important, offering up advice on meal plans and listing the foods to eat and stay away from. I think I like these the best because they enable you to feel more control over your health, and offer a glimmer of hope. I have started to put a link to some of the sites I find most helpful, and hope that my research will help some of you find some great sites.
It certanly is scarry going through the process of fighting a disease(especially one where the best "treatment" is a transplant, certanly not a sure thing or a cure), but information is power, and having access to all this knowledge at my fingertips makes me feel so much more powerfull in this fight.
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